I also covered the furniture with sheets and cleaned up with soap and water and a dry towel everyday. This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. 2. [4] In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. That was where the majority of my swelling was, this corresponds to about where the top of the thyroid was. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. Methods: It is found in the front lower part of your neck. So, I was drifting in and out. I hate the word goiter. I reminded them I was 50 miles away, and they said to keep my phone with me. By the time my room was ready I had eaten two cups of ice chips and was extremely thirsty. While doing the setup for the Stapendectomy preparation Dr H. noticed I had a lump in my throat and sent me in for further testing. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. I was visibly nervous, so my anesthesiologist provided me with some drugs to calm my nerves (they later said it did not calm my heart rate one bit), but as I was wheeled to the OR I felt much calmer. Stay alone in a separate house if you are able for RAI(it really is hard to keep your distance). Increased swelling, redness, or drainage from the incision. Just allow some water to run over the incision site and cleanse it. After 7 days I went for my body scan. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. That said I had this horrible monkey on my back for weeks and I really couldn't shake it. Any suggestions will be greatly appreciated. Days to Celebrate The first time I had RAI I had absolutely no symptoms. #1. Those are the same medications they give you for a colonoscopy. Should other lymphnodes in the .7mm range be suspect as well? At 18 days post surgery the throat pain flares up only if I over use my voice. Nov 2009 through Oct 2010. Within half an hour I was being wheeled to the elevator to head down to the first floor. Most people start to feel recovered in 10 to 14 days. Total or near-total thyroidectomy: This involves the removal of all or most of the thyroid gland.This surgery is often indicated for large thyroid cancers, large goiters, and Graves' disease. My personal torturer is U. and he is defiantly good at his job of making me hurt for an hour + so I feel better later. However in addition to no LID, no one ever discussed things like AG, AGant, what TSH is, etc . I've posted a few times since my thyroidectomy on 12JUN; but really wanted to give a more detailed account. They seemed as entertained by me as I was them, since most of the patients are far more groggy. 14 Months After Thyroidectomy. I am still thinking the level of Synthroid is low for me but according to Dr Ch. However, the location on the neck minimizes the likelihood of keloids. I was set up with an appointment the Friday before my Tuesday surgery to meet with the hospital for pre-op which included the anesthesiology department physician's assistant, blood work, a urine sample, a chest x-ray, height, weight, EKG and maybe a few test I'm not remembering right now. Before The tonsillectomy was pure hell! The first time I did it at 75mCi and the second time at 200mCi (lung nodules don't seem to uptake which is annoying, so we tried to hit them with a bunch). As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. doi: 10.1097/MD.0000000000018309. You can expect to have some pain after surgery. Once again, have never had that problem nor do I know anyone personally who has any issue whatsoever. I have friends that "had a friend that went through this and they are just fine". PDF Annals of Pain Medicine Case Report - remedypublications.com Yeah! I also am a side sleeper and had trouble getting any rest whatsoever. I blacked out again for a couple minutes and awoke in the recovery room asking the surgeon multiple times if he was going to do the surgery. I did the thyrogen shots instead of going off of my synthroid, so if you have that option, would 100% do it. This is very long and is intended for people new to the group who haven't had surgery yet. I really haven't had pain since mid-lsat week. But, you could tell pre-op was used to people popping in for a brief stay and then being whisked off to surgery. It just takes the right approach. I had my TT exactly 2 weeks ago. Once they do this will it be possible to do strenuous exercise (Boxing / Sprinting etc ) or could that affect my heart? On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low. This cancer also caused me to put radiation through my entire body possibly damaging me AND my family. I also felt myself getting hungry which was a good sign. We present a case of a patient who returned with a neck swelling 6 days following thyroidectomy and central neck compartment lymphadenectomy for suspected thyroid carcinoma. Was able to do up and down 3 times each leg. They said they caught it early though and think they were both stage one cancers. mcg of synthyroid. Cleanse the incision area the day after surgery. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. I kind of learned quickly to tilt my chin toward my chest as I swallowed to lessen the pain and actually got the four HIV and a couple of other pills down. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. Once there I registered and was sent to the 11th floor where I was placed in a nice looking hospital room. But, pre-op doesn't have those units because most people are only in pre-op for a short time. I sound much better now but I do speech therapy constantly to improve strength (I'm a speech path so I knew what I needed to do), dry needling and physical therapy on my neck. Sihawong R, Janwantanakul P, Sitthipornvorakul E, Pensri P. J Manipulative Physiol Ther. 2. Lump in my neck after Total Thyroidectomy - Thyroid cancer - Inspire Neck Pain: 6 Common Causes and Treatments - Cleveland Clinic Tightness, fullness, painful neck post Thyroidectomy A month later I had a TT and my tonsils out due to a chronic sore throat. I was diagnosed about a year ago after my dentist noticed the side of my neck was a bit raised. Ylinen J, Kautiainen H, Wirn K, Hkkinen A. J Rehabil Med. Which is what I had expected because that is what I was told. She was clinically and biochemically euthyroid without any compressive symptoms. Chronic postoperative pain exists in varying degrees for every type of surgery. A randomized controlled trial was conducted. At last a surgeon came in and had me sign the forms. 28 April started my normal visits to mental health. Also we will have to delay the sleep Apnea testing till after I get my vestibular training done and I can sleep on my back and side. Complications associated are still common and 80% of patients complain of posterior neck pain. Find other members in this community to connect with. I didnt get to see the Drs who did the surgery the Dr I did see told me to hold off on the CT scan and to go back to it if the vestibular training doesnt work. So frustrated and all alone - 2nd guessing what Dr's have done and why. Well low and behold, I am still very radioactive after 8 days to anyone closer than 4'. Just seems like order of operations has been a complete mess. However, after getting through that process, I was back to being pretty much completely normal. I have been constantly monitoring my weight and diet, and have been able to keep it in check till now. I am defiantly feeling much more mentally stable after I was put on Synthroid. We also scheduled appointments for me with the same nutritionist that S. has been using for her weight loss. Some people experience short-term side effects after thyroidectomy, including the following: Neck pain: You may experience pain on swallowing or breathing for several days following surgery. Nerve pain or neuropathic pain comes with skin sensitivity, tingling, numbness, and stabbing pain. Numbness or tingling of fingers, toes, or around the mouth. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. 18 October. Stabbing neck pain!!! - Thyroid cancer - Inspire Disclaimer. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. By Friday morning I got up at 7:15 a.m. and stood in line in 32 degree weather for some Goose Island Bourbon County, went to lunch and ate a cheeseburger. He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. Before I could not work out as I was to Hypo and the headaches alone were so bad . but now after 2.5 weeks on the meds I have some energy back. It will go away. From the time I knew I would be "going under the knife" I started experiencing panic attacks, thoughts of extreme terror, and general malaise. I was also finally getting the follow-ups setup so they could deal with my loss of hearing (Stapendectomy) so I managed to get an appointment with the ENT Clinic. The result of the biopsy concluded Papillary Carcinoma. Parathyroidectomy - Mayo Clinic July 26th Another mental health appointment, another good visit he is defiantly happy with how I am doing and we are figuring out that I probably dont need too many more appointments for now at least. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. I had quit my job to start graduate school last fall and then had to defer my graduate program to next year because I couldn't continue during the winter quarter. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. How long it takes to recover will depend on your situation and the type of surgery you had. I had to make a decision. The participants were randomly assigned either to the stretching exercise group (n = 40) or to the control group (n = 40). This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. The middle cervical ganglion and the sympathetic trunk lie posterior to the thyroid gland close to the inferior thyroid artery within the thyroid bed (Figure 2). Although, I have a lot of support from my family and friends, I am struggling with inexplicable sadness. That was attributed the nodules and the cancer. Removing all or most of the thyroid (thyroidectomy). I took all my own sheets, towels and wore gloves the first two days. It's been just over two weeks since my thyroidectomy. Also, at home, you have to empty and measure the JP drains yourself, and when I had them in my abdomen that as difficult. I've always had the pain when coughing hard. Objective: This is my biggest problem at the moment, not being able to work out is making me sit here and lose my mind. 2022 Oct-Dec;18(4):641-642. doi: 10.4103/jmas.jmas_174_21. Fever with a temperature higher than 101.5. A new nurse was on duty at that point and she pointed out that thicker things were easier to swallow than thinner things. If skin is not sufficiently retracted after 6 months, anterior neck lift or lower face/neck lift should be a consideration. All assured me that I would be in good hands and they would see me in a few hours. I did. Musculoskeletal neck disorders in thyroid cancer patients after This site needs JavaScript to work properly. 2011 Jan;34(1):62-71. doi: 10.1016/j.jmpt.2010.11.005. On April 19th I started on the low iodine diet and stopped taking Cytomel in preparation for Radioactive Iodine treatment. After about a week or so, the pain was intermittent. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. 9 Mar 2011 1 year from having thyroid removed The problems I have had with the radiation therapy metallic salty taste in mouth and constant dry mouth. That caused the pain in my throat to come back stronger for a day or so. As soon as you can turn your head without pain or difficulty (within about a week . What Causes Pain in Incision Months After Surgery? You can get angry or upset if you want, but in the end it is what it is and you got to just keep pushing along with your life. Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. On June 10 I had my follow-up with Dr H. for the thyroid removal and got another unofficial look at the CT scan. Has anyone struggled with breathing issues post TT? On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours Exercise therapy for office workers with nonspecific neck pain: a systematic review. I also never took any narcotic pain killers after surgery. 14 Months After Thyroidectomy Cancer Survivors Network By 6:30 or so I was famished. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. The reasons for that are in this post https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/its-100-for-sure-cancer-pathology-report-back/ Kappeler mentioned Horners syndrome as a complication of thyroid surgery in 1865, and Kaelin reported a case of the syndrome following thyroidectomy in 1915. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Is RAI 90MCI enough to take out 2 lymphnodes? They redid the area around my neck for about 10 more minutes (this is slightly unnerving). It is important for endocrinologists and thyroid surgeons to be aware of this uncommon complication to reduce the risk for this facial disfigurement during surgery. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. When I first started this journey I read that thyroid cancer is a good cancer to have and I told my family this to ease their fears (and mine). She also told me that if I need another surgery to fix the problem that there is a 10% chance I will lose all hearing in that ear, and being that it is my better ear I seriously hope I dont need to get surgery. After two weeks I just showered and shampooed normally. Removing lymph nodes in the neck (lymph node dissection). Hi, Wednesday and Thursday I continued to improve. Difficulty swallowing. He said he wanted to get my RAI done - he likes to do it within 3 months of surgery and thought it had been enough time since ct. Double check with your insurance even if your dr and hospital say you're covered. Results. Medicine (Baltimore). I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. Take care everyone, and to those with surgeries coming up I wish you all the very best. So, I might be called to come in early. I did not want to be anywhere around my kids or clients. The first few sips of water are described below, but then the pain quickly got better over the next week. Vascular dilation on the other side of the face may or may not be present (Figure 1). The week of the 20th to 25th I had my first run-through of TAP class, there is so much information they give you there I am so glad I can go again prior to retiring. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. I went home around noon the next day and the hour long drive home wasn't that bad. I know the levels that I'm supposed to maintain at are different from those of normal people with a thyroid and no cancer history. The aim of this study was to analyse the long-term musculoskeletal disorders in TC patients who had undergone thyroidectomy. Unauthorized use of these marks is strictly prohibited. By really looked into it I mean I called lots of doctors looking for one to do the robot assisted surgery. My voice was also severely affected but it got better with exercising. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. 2010. Every step of the way I've made sure to get the best of the best, and so many times I've gone to new specialist who have said "you're so lucky you had the surgeon that you did, because he's the best of the best and did a fantastic job". Gen A, elik SU, Gen V, Gkmen D, Tur BS. NSAIDs (non-steroidal anti-inflammatory drugs) such as ibuprofen (Motrin, Advil), naproxen (Naprosyn, Aleve), or acetaminophen (Tylenol) are most helpful for any pain after thyroid or parathyroid surgery. I also feel sad that my recovery has stagnated and I don't see any improvement in my voice or breathing. I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. PMC Thyroidectomy - Mayo Clinic Everyone was extremely professional, everyone was very nice. A few days later she called again and said that my Vitamin D is also very low and I would have to have another appointment with my PCM to get high dose Vitamin D pills. I called the Mayo Clinic (all three branches MN, AZ and FL), the University at Loma Linda California, UC San Diego, UCLA, UC Irvine, The University of Miami, Baptist Hospital Miami, Jackson Memorial Hospital Miami, The Texas Institute of Thyroid and Para Thyroid Surgery (Dr. Kuppersmith) and am sure a few more that escape me right now. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. Chronic post-thyroidectomy pain: Incidence, typology, and risk factors An official website of the United States government. Results: 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. 1) July 21st went to an ENT for sore throat, bad pain when i swallowed, and what I thought was a swollen lymph node, and he told me that is not a lymph node but my Thyroid and I really need it checked. I will say the fear I experienced made everything seem like a breeze following the surgery. 2 Mar 2011 1 year from being told I have cancer. Argue with people or agree with people, agree to disagree if that's what it takes to get you through this. They said let the steri-strip fall off on its own and it fell off today. My Dr (Endo) said he did not want me in his office for another 7 days and the hospital nurse said that was crazy and she used a Geiger counter on me to see how "hot" I was.

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